Turning 18 years old is usually a time for celebration, but for thousands of young people in the UK who are living with life-limiting or life threatening diseases..
..making the transition from children’s to adult’s palliative care between the ages of 16 and 18 can cause feelings of confusion, anger and alienation.
Palliative care patient Emma knows this first hand, and although her transition into adult care was relatively smooth, she still felt frightened, alone and that staff didn’t know how to care for her.
Despite two decades of research and initiatives, young people with life-limiting and life threatening conditions still find transition unsatisfactory.
New research, led by Professor Jane Noyes from the National Centre for Population Health and Wellbeing Research and funded by Together for Short Lives, has recommended a new model of care that could change that experience for thousands of young people.